cid ee711120e18e98b5509855e29f7a419a8150751af6d5fbcb596d8ad77e25a409 · original · open access · via openalex
Title: Development and initial validation of a new short and simple Health-Related Quality Of Life (HRQL) Questionnaire for Pediatric Rheumatic Diseases (PRD) Authors: Elena Palmisani; Giovanni Filocamo; Claudia Saad‐Magalhães; Alessandro Consolaro; Silvia Magni‐Manzoni; Stefania Viola; Angela Pistorio; Nicolino Ruperto; Daniela Tani; S Serpico; Alberto Martini; Angelo Ravelli Venue: Pediatric Rheumatology Year: 2008 Canonical: doi:10.1186/1546-0096-6-s1-p107 URL: https://doi.org/10.1186/1546-0096-6-s1-p107 Collector: openalex OA: true ABSTRACT To develop a new short and simple measure for assessment of HRQL in PRD and provide preliminary evidence of its validity in JIA. The Pediatric Rheumatology Quality of Life (PRQL) includes 10 questions, each scored from 0 (normal) to 3 (worst). Score range is 0–30. The PRQL contains two subscales, each composed of 5 questions (score range 0–15), that assess physical (PhH) and psychosocial (PsH) health. Validation of PRQL included evaluation of feasibility, face and content validity. Construct validity was assessed by calculating Spearman's correlation with JIA outcome measures in 723 visits (403 patients) made between 2007 and 2008. Construct validity of PRQL was compared with that of Child Health Questionnaire (CHQ) by assessing the same correlations of in a historical sample of 501 visits (448 patients) made between 2002 and 2006 who had CHQ completed. All completers reported that PRQL was easy to understand and fill. Completion time was